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h2 CAGI Data Use Agreement
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em Essential information about how you can use CAGI data. Please read carefully,
| because it might contain data use restrictions that you did not expect.
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| CAGI aims to advance phenotypic interpretation of genomic variation. The CAGI experiments depend on
| the interrogation of data from people whose information has been collected as part of clinical care,
| following participation in a research project or biorepository, or from healthy volunteers. Some of these
| data—incorporating both genotypes and phenotypes—are sensitive and personal and therefore must be
| handled with the utmost respect, integrity, and care. This includes being maintained with the highest
| standards of data security and confidentiality.
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| The success of CAGI also hinges critically on the generous contribution of pre-publication datasets and
| the participation of predictors and assessors. Many datasets affect individuals’ careers.
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| To protect unpublished and sensitive data that have been shared with CAGI, and as a condition of
| participation in CAGI, CAGI participants must agree to the following dataset dissemination rules. Here we
| define CAGI “participants” as those who have any role in CAGI, including predictors, assessors, dataset
| providers, organizers, and advisors.
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| All datasets (including genotypes and phenotypes) are confidential until released by the dataset
| provider. Release may take the form of (a) datasets that are posted on the CAGI website and
| explicitly labeled as open public access, (b) explicit written permission from the dataset provider to
| use the data for a limited set of applications, and/or (c) publication of the full contents of the dataset
| for unrestricted public use (publication of partial or restricted datasets constitutes release of only
| that partial or access restricted dataset).
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| CAGI participants agree not to share unreleased datasets with anyone except other registered and
| approved predictors who have agreed to these terms.
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| It is the responsibility of each CAGI participant to maintain the privacy and security of datasets
| obtained from CAGI. CAGI participants must keep the files on secure systems and may not submit
| confidential data for predictions on third-party webservers.
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| CAGI participants agree not to use an unreleased dataset for any other purposes than that described
| in the CAGI challenge for the dataset.
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input.form-check-input(type="checkbox" name="item5" checked=(data.item5?true:false) id="item5")
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| CAGI participants agree not to use unreleased datasets for any commercial purpose.
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input.form-check-input(type="checkbox" name="item6" checked=(data.item6?true:false) id="item6")
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| CAGI participants agree not to use any unreleased datasets in any publication, for example as a test
| case (even if the source of the data is not disclosed) or for reporting a discovery that the CAGI
| participant might have made when analyzing the data.
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input.form-check-input(type="checkbox" name="item7" checked=(data.item7?true:false) id="item7")
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| Following dataset release, CAGI participants may use the data with the same freedom and
| constraints as others who obtained the data via public mechanisms (i.e., without participation in
| CAGI). Even after release, dataset use may be constrained (e.g., due to privacy issues) and
| participation in CAGI does not release CAGI participant from those constraints.
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| Any requests for early release of dataset contents for a specific purpose must be submitted via the
| CAGI organizers, rather than directly to the dataset provider.
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| All CAGI participants, including those within the same research group, must individually sign the data use
| agreement. To register for the CAGI dataset access, you must read, understand, and agree to these data use
| rules. If you agree to these rules, please indicate this by providing your initials.
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| **Examples of what your Initials should look like:
| For John Doe it would be JD
| For John M Doe it would be JMD
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| If you accept the aboving agreement, please put your initials here
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input.form-control-sm(type="submit" value="Accept")
a(href="data_use_agreement.pdf") Please download a copy of this agreement here.